Back to the future...again

To all those who may have stumbled on to this site by a feral keystroke and those three past   followers...WELCOME BACK!

Tis not like I didn't want to post over the past few years on the subject of health care excelling in putting the "fun" in dysfunctionality.  And..somebody certainly most wiser than me once said, "Write what you know." Oh...I know and have had every reason in continuing to join all those bloggers "popping off" about an issue screaming inside their head and leaving them in a state of wonderment on why all readers don't share their same passion. It is not hard to get passionate and sometimes just damn angry when you see a loved one chronically in pain and  co-suffering the accompanying hopelessness.

The personal exhaustion factor seemed so overwhelming and I continue to exist in a relentless state of "shock and awe" as our family continues to search for some answers surrounding my daughter's decade long battle with ungodly health (refer to previous posts for sense of her journey in an unbelievable health care maze).

So...the gloves are off from here on out. This will be a narrative of advocacy.  Change is good. Look, my intention isn't to strike a pose of a great iconoclast of the health care system.  Providers have a tendency to protect their commitment to medical care and get defensive when their reputations are questioned. But, for over a decade, I have watched my daughter suffer...and it angers me. It angers me more thinking about the many people who will never read my poor pathetic attempts at a blogging. They often lack the advocacy that I have felt oh so lucky and blessed to possess.  I would not want to be Michelle's doctor and believe me, there have been many who have gracefully...or not...bowed out of that responsibility over these years.  I mean not to offend, just provide a little positive tension when it comes to subject.  If we can't pause and offer a little self criticism, how can we get better?

We call Michelle the "tail of the bell curve" and if you look at the bottom of my site, you will see her in front of a picture of zebras. There is great symbolism in that moment, because at the risk of sounding cliche, when we hear the sounds of "hoofs" we think horses, not zebras. Zebras often confirm a critical diagnosis.  Remember? It is the "practice of medicine!"

From now on my dedicated readers, my post will focus on sharing events and experiences that can enlighten. Like many of you, Michelle's continual trial motivates us to find the top of the puzzle box so we finally solve the mystery.  We are going to start from right here and now...going in reverse and in no particular order (it blends well with my adult adhd).  I got the idea a couple of years ago when I purchased the first installment of Mark Twain's autobiography...and it was random and I liked it.  The bottom line is, please stay with me and share the trials and the frustration and the small victories that our family as had. We willingly share Michelle as your personal lighting rod.  I promise it will help and you will never feel that you are bearing your particular health care crisis alone.  The pharmacist is in and he is to be trusted. And remember...take as directed.
Blake